Meeeeeeeeeee's Blog

A week that was…

April 20, 2009
12 Comments

It has been a time of cancelations and chocolate.
It started on thursday with my planned day out looking around the shops and lunch with a friend and the boys (carrie-ann was at her nans for a week to have peace and quiet to study for her exams ) my friend had to cancel and we made arrangements for lunch on good friday which again was canceled as an eldery member of the family was hospitalised.
Saturday was our early birthday treat for Robin to drayton manor and thomas land for Isaac,we had a fun day Isaac had a few seizures in the theme park think it was over stimulation of his senses and lights.
Sunday we went to church and after had our usual easter egg hunt,my hot air balloon trip was canceled due to low visability.
I have managed to decorate my lounge through dining room and have done some gardening taken the children swimming (Isaac had a seizure after in the changing rooms) and spent some quality time with the children.
Yesterday after church as it was a lovely day Isaac was playing in the garden with myself and the children and he ran and twisted his ankle,he started limping and it kept giving way and started to swell a little so it was off to A & E which is about nine miles away,I was very impressed by the staff I went to reception and after booking in was in triage within a few minutes the nurse took a few details and I went back into the waiting area I was expecting at least an hour wait or more and straightaway they called us through.
Apparently as he was calm and quiet they saw him straight away as him having autistic traits and epilepsy it would be easier for him and the doctors to examine him then rather than let him get stressed out by the long wait which in turn could cause him to have a seizure.
Luckily he had only sprained it so calpol and hardest part trying to get him to rest it. whenever he gets nervous he laughs,so he spent most of the time at the hospital giggling.Oh and nessa the rabbit bit his finger so he has a tubi grip on his ankle and a plaster on his finger.

How is everyone?

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full of hope

March 17, 2009
10 Comments

After my earlier post today via my phone,things are picking up.
Isaac had lost a little weight but nothing to cause concern and his medicine isn’t fully controlling his epilepsy but seems to be working as well as expected so We don’t have to take the riskier option.
whilst in with the paediatric specialist he informed me he had recieved the disability forms and had to fill in five questions and his secretary would type up a letter and send it off straightaway.The questions were how many seizures does Issac have a day/ night and what type,he put up to five a day and two a night gran mals,full body shakes/jerks.Can they be predicted ? he put no,Is there a warning sign or aura before? again he put no,as not all types do and how can a two year old tell you if he did.Does he need more care supervision than a normal two year old and at risk of getting hurt because of disability? he put yes needs to be kept eye on.
The one he needed information on and was waiting to ask me was when was Isaacs last seizure,which was on the bus this morning .
He has put him down with epilepsy and autistic traits as he is too young to get a diagnosis of autism until he is nearer to four.
The doctor thought the questions on the forms were as silly as I did.
I have to wait for the beaurocrats to make a decision what help if any they decide to give him,should take another couple of weeks.
oh and the regression thing maybe down to trauma of the hospitals and tests and he should make a full recovery or sometimes memory is effected with epilepsy and medication,so to keep on practicing and refreshing his memory should help.
Isaac has had or rather got a busy week,pre-school yesterday and he came out with a sticker saying I knew the day of the week! (which amazed me as I didn’t even know he knew about time concept) he had a trip to the hospital today and is on his trip to the snow dome on friday, and he has a lovely new car to have a ride in that was a bargain £30 off ebay brand new battery operated one which I couldn’t even wire up so had to ask a friend from church to do which he did last night for me,Isaac decided the box made a lovely tractor,then robin decided it made a lovely tardis and Isaac reclaimed it this time as an aeroplane.
I think later on this week I’ll do a post of a week in pictures,I may even put the one of robin dressed as a girl for comic relief at school he raised £50 in sponsorship money only two boys were brave enough to turn up as girls one boy a yr 11 boy went the whole way and wore thongs and stockings.


In mc donalds via I phone.

March 17, 2009
2 Comments

I got the early bus as it takes an hour to get to the hospital and if I wait for the next one I have a hectic rush across lichfield,and as Isaac has to see the nurse and be weighed and measured first I have a five minute slot to get to the hospital.isaac is asleep as he had a seizure on the bus,people were staring.I really wish they wouldn’t do that. At least as a toddler he’s not aware of the concept of being different.