Meeeeeeeeeee's Blog

microcephaly awareness day

August 21, 2009
8 Comments

Last year on the 30th of september the first national microcephaly awareness day was held and people were urged to wear red to show support and raise awareness.
I set this up via my son robins facebook group as microcephaly is a very rare disability and it was a sadly overlooked disability it went really well with people over the uk wearing red for the day a bus company in portsmouth wore red,various schools wore red and the money raised went to bibic a charity which helps children with various brain injuries and disabilities including microcephaly.
Last year I was busy emailing downing street,even our majesty the queen was asked if she would support us by wearing red and giving press interviews,I was quite surprised I have been asked by a charity in USA the children with microcephaly foundation if they can join us this year and make it global.
I obviously said yay as it is doing exactly what I aim to do and make this rare disability known,this year we are wearing yellow as it is the charities colour and as it is the only charity for microcephaly in the world I agreed to change the colour.
As robin started this campaign I was asked if his photo could be used on the press release and flyers again I have agreed Robin is saying wow I’m going to be famous in america not quite as famous as michael jackson.

The press release has been done today and flyers I have just emailed off a photo of young man so it can get into circulation,jenniffer the president of the charity is going to send copies of the press release and flyers.
It goes to show if you think you are too small to be effective you have obviously not been in the dark with a mosquito,from a small person like me wanting help my son lots of children and parents will be helped all because an eleven year old boy wanted people to be aware of his disability.
Robin had ideas and is being helped bring them to light by our american friends,I am so proud of my son he is an inspiration that even though he has learning disabilities and physical disabilities he wont give up.


My blog has been hijacked!

June 2, 2009
2 Comments

well I was going to do a post about the weekend of wonderment we had and also have to do a post on the lovely One nice blog award I’d so kindly recieved from midwife muse,but alas It will be put on hold as Robin as more pressing matters in hand.
Robin wants to help raise money for help for charity help for heroes to help raise money for our brave troops after some have got hurt or need therapy to help live a full active life after giving their all for us,as Robin has had therapy being special needs and having a disability so he knows how much better his life has been after getting the help and support.

He is asking his teacher at school if he can do something to raise money for help for heroes,and he is going to use my blog as well,the idea is that for this week on this post of his on my blog that each person who comments on it a pound will be donated to help for heroes.

ps:obviously there will be a cut off point as myself and his sister are helping him honour his promise to pledge the money.