Meeeeeeeeeee's Blog

microcephaly awareness day | August 21, 2009

Last year on the 30th of september the first national microcephaly awareness day was held and people were urged to wear red to show support and raise awareness.
I set this up via my son robins facebook group as microcephaly is a very rare disability and it was a sadly overlooked disability it went really well with people over the uk wearing red for the day a bus company in portsmouth wore red,various schools wore red and the money raised went to bibic a charity which helps children with various brain injuries and disabilities including microcephaly.
Last year I was busy emailing downing street,even our majesty the queen was asked if she would support us by wearing red and giving press interviews,I was quite surprised I have been asked by a charity in USA the children with microcephaly foundation if they can join us this year and make it global.
I obviously said yay as it is doing exactly what I aim to do and make this rare disability known,this year we are wearing yellow as it is the charities colour and as it is the only charity for microcephaly in the world I agreed to change the colour.
As robin started this campaign I was asked if his photo could be used on the press release and flyers again I have agreed Robin is saying wow I’m going to be famous in america not quite as famous as michael jackson.

The press release has been done today and flyers I have just emailed off a photo of young man so it can get into circulation,jenniffer the president of the charity is going to send copies of the press release and flyers.
It goes to show if you think you are too small to be effective you have obviously not been in the dark with a mosquito,from a small person like me wanting help my son lots of children and parents will be helped all because an eleven year old boy wanted people to be aware of his disability.
Robin had ideas and is being helped bring them to light by our american friends,I am so proud of my son he is an inspiration that even though he has learning disabilities and physical disabilities he wont give up.

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8 Comments »

  1. fantastic!!
    reminds me of the quote “someday the weak will lead the strong”.
    best of luck.. all the way in Canada!!

    Comment by Admin — August 21, 2009 @ 9:25 pm

    • Thankyou.I’ve just been emailed the press release and It brought a tear to my eye how they honoured my son. x

      Comment by fraggle — August 22, 2009 @ 10:36 am

  2. A lovely heartfelt post!
    Well done to you and Robin in getting actively involved as you have.
    It’s that just as much as donations that actually help to get things changed and done.
    I’ll do a post in a couple of weeks that links to this one, and to the charities you mention, as my way of helping promote such a good cause. Take care! xx

    Comment by Flighty — August 22, 2009 @ 9:18 am

    • Flighty:Thanks I have emailed you the press release before it goes out on monday so you get first peak and a flyer that will be posted around with Robin and some of the other children on.Have a good weekend x

      Comment by fraggle — August 22, 2009 @ 10:40 am

  3. My dear, it is really you who won’t give up — you make it possible for him to garner attention that’s needed in this rare but serious disease. Well done, both of you!

    Comment by nikkipolani — August 24, 2009 @ 5:52 pm

    • Nikki:he is having photo taken for local paper tommorow and two more local papers doing articles and the daily mail also rang asking me to email information,and a womans magazine give awards to outstanding children each year, they have put robins name forward and may do a mention as a pride of Britain child.

      But bad news today my dad got cancer and to weak to operate starting chemo Thursday, not looking good.so mixed bag today x

      Comment by Fraggle — August 24, 2009 @ 7:22 pm

  4. Sounds fantastic! Would love to find out more about this disease and will support u on that day however i can xxx

    Comment by crazykites — August 31, 2009 @ 2:58 am

  5. rry disease is probably not the right word is it? i mean…learning disability condition…

    Comment by crazykites — August 31, 2009 @ 2:59 am


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