Meeeeeeeeeee's Blog

Mothers pride | March 4, 2009

The paediatric assessment went a bit bleugh,Isaac was a little star he is so used to being seen by medical staff it is second nature,he cooperated with every thing the dr did or asked then he asked some questions regarding his fathers side of the family and about siblings a couple I couldn’t answer as hadn’t heard from Isaacs dad and whilst in assessment room used the phone to ring him and ask or so he could speak to the doctor and his mobile was switched off and as he had recentley in last few weeks moved job I hadn’t got landline or new works no,I looked an idiot as you could see on the specialists face the *what sort mum doesn’t get emergency no for childs dad or works no* as it mod not just going to say oh yes here new base and would have taken all allocated time to trace him especially if he was off base.He has been refered to another specialist for therapy so is now under three different paediatricians and still not 100% sure diagnosis yet as at aged two its hard be easier when 4-5 may possibly be epilepsy with autism, and regression could be due to the stress of hospital and effect seizures had on him.
Or lennox gastreaux which is a syndrome with all three of the afore mentioned symptoms.even possibly another syndrome that I cant remember as when on own trying to take things in you miss things or forget what has been said,so towards the end of consultation as Isaac was tippy toeing around the room I said by the way he walks on tip toes a lot,can you check feet or heels as tendons may be tight or any idea how I can get him to walk on feet properly as I don’t want him to have a bad back to add to his list of problems,the doctor said walking on tip toes is a sign of autism so we went back full circle to that he checked his feet and they are fine.

I entered carrie-ann into the litchfield bower queen competition,The newspaper article stated that they wanted photos and a campaign of why you should be the queen,representing your college and list of charity work and community work you do and must be confident.Carrie-ann ticked all qualifying boxes beauty,brains community and charity minded.I sent two snap shots and a list of charity work and community work she does and what 6th form she goes to etc..
When I got back home today she had a letter on the doorstep she had got through to the finals,she is at a photo shoot on saturday at the golf club and can use the facilities all day and the judges can get to see the girls personalities and on sunday she is at a very posh bar in litchfield for a rehearsal and to meet the compere at 4pm then the final at 7.30 pm,the litchfield bower is one of if not the oldest carnival in the country and as its a special anniversary they are looking for a very special girl.
So to get to the finals is an achievement in its self

I know that Isaac is at risk as a severe epileptic and going into status eplilepticus and wouldn’t dream of not letting his dad know of any major medical issues but what am I supposed to do if his mobile is switched off and he hasn’t told me where his new base is?

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3 Comments »

  1. I suspect that you felt as did did yesterday because of today! Anyway that’s out of the way for the time being so I hope that you’re feeling better.
    I don’t see that there’s anything you can do about Isaac’s dad but when you do get to speak to him perhaps you should voice your concerns about the lack of contact.
    Fingers crossed for Carrie-Ann! You must be such a proud mum and rightly so!
    Take care! xx

    Comment by Flighty — March 4, 2009 @ 9:38 pm

  2. Hugs hope your feeling better babe. I know its a struggle for you at times. Forget about Isaacs Dad. He hasnt earned that title and is rubbish at it.
    Hope CA wins. x

    Comment by Fabulous — March 5, 2009 @ 11:16 am

  3. Isaac dad in hospital, that why not contacted got message today, don’t know why 😦 feel guilty for doubting him ugh.

    Comment by fraggle — March 6, 2009 @ 9:21 am


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