Meeeeeeeeeee's Blog

poorly pc

March 31, 2009

I have got my pc back yay.
It has been into a shop to sort It had a virus and had to remove programmes,I probably could have sorted it myself but as I’ve had Isaac poorly for the last three days with regular seizures occuring it was easier to have it checked and sorted by someone who could focus their mind on the job in hand.
I have managed to do half my back garden just preparation work and today I made Isaacs easter bonnet and brought him a rabbit from the pet shop,I find when Isaac is calm he has less seizures and stroking animals is relaxing and theraputic,so we went this morning to choose a rabbit,Isaac chose a lions head one a little girl we are picking her up maybe thursday or friday as I couldn’t carry her home and push Isaac in the pushchair at the same time.
I have no idea what to name the rabbit as Isaac wanted to call it harry!
the children break up school friday for two weeks,so there will be lots of fun a trip to drayton manor and thomas land,a farm trip Robins birthday and the annual easter egg hunt in my garden.
Isaac has his easter bonnet parade followed by an easter party at mother and toddlers tommorow,his hat has daffodils made out of crepe paper and nest on top with egg shells and chicks.
It is far easier making girls hats as you can make really flowery and put on bows and lace and really go over the top,he looks cute in it anyway!


comfortable in my own skin

March 24, 2009

I have to wait in for my yearly gas service checks so I thought I would make use of the timeand does something productive.
I sorted out my wardrobe and rotated it so the spring and summer clothes are at the front ready for the sunnier weather,I was quite happy that a few items fit me like a glove as I have put my weight back on I’d lost I’m back up to a size 6-8 all depending on the make of the clothes last year due to stress and very ill health I went to a size zero not nice I looked like one of lauries drawings.
I have put my winter boots away and got my summer shoes and sandals ready,as I’m on an economy drive I am using last years as they still have plenty of wear left and I shall avoid the shoe shops which is my weakness.
I have seen a pretty girly dress that caught my eye I may buy it as a treat to myself.

I am having my nails done and a facial tonight by carrie-ann as an extra mothers day treat.

A week in pictures

March 20, 2009

mobile-pics-013mixed-012isaacs-week-007isaacs-week-010isaacs-week-003isaacs-week-012mobile-pics-010random-010 as promised a few quick snaps of the boys busy week,why when Isaac has a comfy bed did he decide to take his toys out of the toybox at the front of his bed and want to sleep in there?? Robin made a lovely girl on comic relief day..
I was so proud of Isaacs sticker from pre-school,he had a lovely time at the snowdome today I had a wet bottom from sitting on a rubber ring to slide down the hill it was strange being in winter clothes and playing in the snow then walking outside into a quite sunny day and the signs of spring around.

full of hope

March 17, 2009

After my earlier post today via my phone,things are picking up.
Isaac had lost a little weight but nothing to cause concern and his medicine isn’t fully controlling his epilepsy but seems to be working as well as expected so We don’t have to take the riskier option.
whilst in with the paediatric specialist he informed me he had recieved the disability forms and had to fill in five questions and his secretary would type up a letter and send it off straightaway.The questions were how many seizures does Issac have a day/ night and what type,he put up to five a day and two a night gran mals,full body shakes/jerks.Can they be predicted ? he put no,Is there a warning sign or aura before? again he put no,as not all types do and how can a two year old tell you if he did.Does he need more care supervision than a normal two year old and at risk of getting hurt because of disability? he put yes needs to be kept eye on.
The one he needed information on and was waiting to ask me was when was Isaacs last seizure,which was on the bus this morning .
He has put him down with epilepsy and autistic traits as he is too young to get a diagnosis of autism until he is nearer to four.
The doctor thought the questions on the forms were as silly as I did.
I have to wait for the beaurocrats to make a decision what help if any they decide to give him,should take another couple of weeks.
oh and the regression thing maybe down to trauma of the hospitals and tests and he should make a full recovery or sometimes memory is effected with epilepsy and medication,so to keep on practicing and refreshing his memory should help.
Isaac has had or rather got a busy week,pre-school yesterday and he came out with a sticker saying I knew the day of the week! (which amazed me as I didn’t even know he knew about time concept) he had a trip to the hospital today and is on his trip to the snow dome on friday, and he has a lovely new car to have a ride in that was a bargain £30 off ebay brand new battery operated one which I couldn’t even wire up so had to ask a friend from church to do which he did last night for me,Isaac decided the box made a lovely tractor,then robin decided it made a lovely tardis and Isaac reclaimed it this time as an aeroplane.
I think later on this week I’ll do a post of a week in pictures,I may even put the one of robin dressed as a girl for comic relief at school he raised £50 in sponsorship money only two boys were brave enough to turn up as girls one boy a yr 11 boy went the whole way and wore thongs and stockings.

In mc donalds via I phone.

March 17, 2009

I got the early bus as it takes an hour to get to the hospital and if I wait for the next one I have a hectic rush across lichfield,and as Isaac has to see the nurse and be weighed and measured first I have a five minute slot to get to the hospital.isaac is asleep as he had a seizure on the bus,people were staring.I really wish they wouldn’t do that. At least as a toddler he’s not aware of the concept of being different.

I wonder how much he costs?

March 14, 2009

mobile-pics-0151mobile-pics-0162look what I saw whilst in wilkos in the seeds and plant section.
had to grab a quick snap on my phone.

before and after

March 10, 2009

carrie-ann didn’t win the competition and she refused to be in a bikini for local free paper prior with the other girls she is very modest and wore her rugby top and tracksuit bottoms as they were at the gym for photos.
I’m biased but still a winner to me.

Posted in Uncategorized

Mothers pride

March 4, 2009

The paediatric assessment went a bit bleugh,Isaac was a little star he is so used to being seen by medical staff it is second nature,he cooperated with every thing the dr did or asked then he asked some questions regarding his fathers side of the family and about siblings a couple I couldn’t answer as hadn’t heard from Isaacs dad and whilst in assessment room used the phone to ring him and ask or so he could speak to the doctor and his mobile was switched off and as he had recentley in last few weeks moved job I hadn’t got landline or new works no,I looked an idiot as you could see on the specialists face the *what sort mum doesn’t get emergency no for childs dad or works no* as it mod not just going to say oh yes here new base and would have taken all allocated time to trace him especially if he was off base.He has been refered to another specialist for therapy so is now under three different paediatricians and still not 100% sure diagnosis yet as at aged two its hard be easier when 4-5 may possibly be epilepsy with autism, and regression could be due to the stress of hospital and effect seizures had on him.
Or lennox gastreaux which is a syndrome with all three of the afore mentioned symptoms.even possibly another syndrome that I cant remember as when on own trying to take things in you miss things or forget what has been said,so towards the end of consultation as Isaac was tippy toeing around the room I said by the way he walks on tip toes a lot,can you check feet or heels as tendons may be tight or any idea how I can get him to walk on feet properly as I don’t want him to have a bad back to add to his list of problems,the doctor said walking on tip toes is a sign of autism so we went back full circle to that he checked his feet and they are fine.

I entered carrie-ann into the litchfield bower queen competition,The newspaper article stated that they wanted photos and a campaign of why you should be the queen,representing your college and list of charity work and community work you do and must be confident.Carrie-ann ticked all qualifying boxes beauty,brains community and charity minded.I sent two snap shots and a list of charity work and community work she does and what 6th form she goes to etc..
When I got back home today she had a letter on the doorstep she had got through to the finals,she is at a photo shoot on saturday at the golf club and can use the facilities all day and the judges can get to see the girls personalities and on sunday she is at a very posh bar in litchfield for a rehearsal and to meet the compere at 4pm then the final at 7.30 pm,the litchfield bower is one of if not the oldest carnival in the country and as its a special anniversary they are looking for a very special girl.
So to get to the finals is an achievement in its self

I know that Isaac is at risk as a severe epileptic and going into status eplilepticus and wouldn’t dream of not letting his dad know of any major medical issues but what am I supposed to do if his mobile is switched off and he hasn’t told me where his new base is?

holding things together without any glue

March 3, 2009

I really don’t know what is the matter with me today,normally whatever life throws at me I can cope with but today I can’t even my faith in god is shaken and I feel like he is too busy for me.
All I have done all day amongst being on auto pilot and doing the daily tasks is cry and I feel like nobody cares or wants to help or support me.
I don’t generally as a rule ask for help and support and it has taken me a while to learn to ask for help so pride swallowed I ask for some support and i’m expected to get on with things,I know in the scheme of universal things I’m not important but I really can’t cope at the moment,it’s just all too much for me.

Justin fletcher

March 2, 2009

I seriously am either being exposed to way too much ceebeebies or have been single far too long as I found Justin fletcher quite attractive in a non kids presenter way,that is so wrong.
Isaac got a sticker at pre school today for achievement and has a trip all expenses paid for to the snow dome with free lunch for parent and child and a book bag of goodies.
we are off to see the paediatric specialists wednesday and i’ve asked Isaacs Daddy to find out any medical history anything no matter how small may help with diagnosis,then we are hospital free for two weeks,so can get on with some normality and have some fun,weather permitting I’m off to pets corner tommorow to feed the ducks and geese and rabbits.
I’ve a chicken tikka cooking away and little ones are bathed and in there pjamas think they are tired