Meeeeeeeeeee's Blog

my mind wonders and sometimes I loose it completely! | January 30, 2009

Today It has been all too much for me,the dr hadn’t sorted out the necessary paperwork properly or passed the information on to the health visitor,she thought oh a nice easy two year check up,she weighed him he has put his weight back on he had lost due to the medication a side effect is putting weight on,his height is average for a two year old.
She didn’t do any more tests as he has been refered to the child development centre as since he started having his seizures he has lost some previous skills that he had and is showing some autistic traits,which is all pointing towards lennox gastraux syndrome.The health visitor was oblivious to this as none of the drs in the surgery had informed her.various questions were asked does he sleep well,errm all depends if he has a seizure or two in the day then he sleeps nearly all day not so good at night if he has a night seizure or two then he has a broken nights sleep but has a lay in later.Oh I bet you don’t get much sleep *me* no as if he has a seizure I lay awake watching him and checking his breathing if he doesn’t have one I am listening out for him incase he does so don’t get a proper sleep,she said you need some support,so she has put him in a referal so he is in the system.Whilst this was being not sorted but I had to explain again medical history my phone went for the tenth time off Isaacs daddy as I’d not replied what was wrong and why I was upset via texts.I had told him I was too upset to talk to him at the moment which I think made him more determined to speak to me.
After a really horrible couple of days I really was emotional and trying my best to hold things together and thought talking to isaacs daddy wouldn’t do me any good as I’d take things the wrong way and he’d upset me.How wrong I was! he left me a voice mail after about the fifteenth time of phoning me and said I’ve tried contacting you all day as you know this will be my last today as can’t call again so I’ll phone tommorow.
I sat down with the children in the lounge and was chilling as best I could then my phone rang I didn’t recognise the number so I answered in case it was important,it was Isaacs daddy off his works mobile,he was quite frustrated as I’d not answered his phone calls and was worried about me and Isaac we had a chat about Isaacs medication and he agreed that if needed that the riskier option was what we should do for Isaac It was nice to get some input about isaac and a bit of support,he then asked me if I’d got Isaacs bed alarm I said no and he said he would buy one online and have it sent to my house so I could get a bit of sleep and I said because of his seizures in the supermarket and due to the fact that Isaac has lost a few skills since starting seizures He has a place once a week at pre school and his daddy said to help Isaac get his skills back he will pay for an extra session each week and he will try and phone me more to see how I am and how Isaac is doing.
I had a mild asthma attack today too much stress hopefuly things will get better.

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6 Comments »

  1. It’s a shame that what you knew was going to be a difficult day couldn’t have less stressful than it was!
    I hope that the weekend proves to be a whole lot better! xx

    Comment by Flighty — January 31, 2009 @ 11:38 am

  2. Oh my dear. I’m so sorry you’ve had such stresses. It’s difficult to deal with stress when you haven’t had adequate sleep. I’m not sure how that bed alarm thingy works, but I hope it will mean more rest for the both of you. And I’m glad Isaac’s daddy is concerned and making a concerted effort to be of help. Give little Isaac a kiss from me. And a big hug to YOU!

    Comment by nikkipolani — February 1, 2009 @ 1:06 am

  3. flighty: Weekend I’ve locked myself away from the world to get my head together and I’m feeling slightly more optimistic thanks xx

    Comment by fraggle — February 1, 2009 @ 8:30 pm

  4. nikki:the alarm is a thing that goes under his mattress that is wired up to a machine so if he has a seizure in the night it will send an alarm to a monitor by my bed so I can go and check him.
    I’m glad of his daddies help also, it is a weight off my mind ,I’ll give him a big kiss of his aunty nikki x

    Comment by fraggle — February 1, 2009 @ 8:41 pm

  5. Im thinking about u 🙂 x

    Comment by rob — February 3, 2009 @ 5:37 pm

  6. dimples:Thanks that means a lot to me XX

    Comment by fraggle — February 3, 2009 @ 8:55 pm


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