Meeeeeeeeeee's Blog

little blessings | November 19, 2008

    my little blessings,all my children are special and greatly enhance my life and the latest edition is no exception..

but recentley he has caused me many sleepless nights which is part of being a parent but I wouldn’t trade him for the world,Isaac thomas has been poorly since birth and had a horrendous bout of chicken pox at four months old,leaving his immune system weak and vunerable which meant he had to have seperate immunisations spaced out and since he has had virus upon virus.All of which I could deal with quite as could help him by calpol antibiotics,even had very strong steroids which gave him thrush,so more medicine.

His latest illness has left me bereft and feeling inadequate,he at eighteen months old started having what looked like fainting turns,I took him to the doctors and explained and said obviously a baby shouldn’t be fainting and refered him to paediatricians,whilst he was waiting the appointment he had two what look like strokes after ringing emergency dr to send paramedics,they sent him to a local hopspital to see on call dr,who took one look at him said no way child can wait a week to see paeds and rang another hospital and said he was concerned as baby lethargic no muscle tone and really pale,we were transfered to another hospital the doctors kept him over night and the specialist order  bloods ct scans eegs and mri as soon as possible,not mri facilities at hospital so would need emergency appt at another one,whilst being arranged isaac had eeg and was told we could go home once got results as he had picked up and was walking all beit wobbly as left side weak,after eeg i sat around waiting to be told by nurse they’ve got results and the drs are discussing what to do,my reaction was that doesn’t sound good.

after what seemed an eternity of waiting the nurse came and said his results were abnormal and he couldn’t go home,and part brain activity that abnormal was focal in one part of his brain suggesting something causing seizures ie brain tuma,blood clot or dysprasia (a birth mark on brain) after one attempt at mri and mild sedation he woke up scared by noisey machine then tried for ct and again sedate him but he woke up scared and couldnt do as need to lie perfectly still,so outcome bham childrens hospital under general anesthetic which held risks but needed to be done.birmingham childrens hospital is one best in country similar to great ormond street so knew he would have best chances there.

The experience of going down with a baby and having to hold him on your lap whilst nurses and anesthesia specialist put him to sleep is an experience no parent should have to go through,I had to put hand on his little head and hold mask on his face to breathe it in,he was scared and crying so was I,even though the nurses saying if he cries he will take bigger breathes and go to sleep easier,didn’t put my mind at ease was thinking what if he is allergic to anesthesia im hurting my baby,as he fell asleep and I kissed him and was taken to the ward to wait 45 mins which seemed like a year I was as scared as anyone could be and praying he would wake up.

The wait was over he awoke then went back to sleep,as he went to ward for recovery and after a short sleep i gently prodded him to check he was ok,that wait was over just the wait for results after again what seemed like an eternity no brain tuma.phew I could breathe a sigh of relief but seizures more frequent,he is on sodium valporate having atonic seizures where loses muscle tone and collapses and mylonic muscle jerk seizures and recently having another type but i cant recall what called,he had four seizures other day and his health is deteriorating as has very little appetite and seizures becoming more frequent and lasting longer.

he is also showing slight autistic tendencies but that could be because of effect seizures having on him am awaiting to see what paeds say.

This is the part of parenting I dont like the worry and the fact I cant help him just give him 24/7 care.

on a lighter note Robin is doing amazing in mainstream school full time and is getting more handsome by the day,carrie-ann has passed all 12 gcses high passes a* a,s and bs and is doing well at college and is doing forensic science,she is looking forward to watching an ortopsy before she does one.(yuk blood bleugh) i still keep in touch via text and phonecalls with some ex 20 sixers..sunshine,cheeky to mention a few but as pc broke and recently got new one lost email addresses of majority of friends.

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8 Comments »

  1. I’m really sorry to read that little Isaac has had to go through such a rough patch like that. I do so hope that he comes through it okay, as I’m sure he will.
    That’s good to read about Robin and Carrie-Ann. They’ve done so well and must have a really proud mum!
    I’ll add you to my Lawn loungers listing and give you a mention in my next entry.
    Take care! xx

    Comment by Flighty — November 19, 2008 @ 5:19 pm

  2. So lovely to hear how well your two older kids are doing. My dear, don’t discount your 24/7 care! That is help Isaac can’t get anywhere else. I do hope he’ll pull through and have a happy healthy childhood with fewer doctor visits. Praying for you.

    Comment by nikkipolani — November 19, 2008 @ 5:30 pm

  3. nikki,i’ll have to email you and fill you in on the last 20 months,some high points some low points. but hey i’m still looking on the bright side of life.xx

    flighty.yes i’m a very proud mum thanks for the mention,xx

    Comment by meeeeeeeeeee — November 19, 2008 @ 5:37 pm

  4. hello mom,I’ve just set up my blog and will put some pictures on later xx

    Comment by icklebossyboots — November 20, 2008 @ 6:49 pm

  5. ok i’ll drop by and see it later hun xx

    Comment by meeeeeeeeeee — November 20, 2008 @ 7:03 pm

  6. Although our children are 35, and almost 40, we can still remember all the problems of illness etc. Memory fails as the years go on, but still never totally disappears. Accept it, as you know, it comes with the territory. I think it is all part of the bonding process.

    Comment by ip — November 22, 2008 @ 9:04 pm

  7. ip: Thanks these things do come to try us,and I agree it does help bonding ,you just feel sorry when you can’t help them. x

    Comment by meeeeeeeeeee — November 23, 2008 @ 6:53 pm

  8. I pray God will protect Isaac, keep him safe, and hold your precious little boy in His arms. Thank you for your comment on my site. Bless you!

    Comment by God's girl — November 25, 2008 @ 8:48 pm


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